Woman Educates Others About Being “Rare”

Posted on: 10:14 pm, April 10, 2012, by

KANSAS CITY, Mo. — The challenges for someone with a rare disease can go well beyond what you see on the outside.

FOX 4 Medical Reporter Meryl Lin McKean says an Overland Park woman is educating others and helping those who have her rare condition called Hermansky-Pudlak Syndrome.

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