KANSAS CITY, Kan. — A little Roeland Park boy badly needed a blood test at the National Institutes of Health, but he couldn’t get it done because of the government shutdown earlier this month. FOX 4 stepped in to see that Bo Macan got that test. It didn’t provide the answer that doctors had expected.
Bo’s fourth birthday was Monday, and he spent it in the University of Kansas Hospital suffering from jaundice. Then doctors discovered possible infection in the port in his chest. So Wednesday, he had surgery to remove the port.
“We came in for one thing. It ended up being another,” said Bo’s mother, Carolyn Macan.
Bo’s mother and his doctors know Bo is prone to serious, life-threatening infections. But they don’t know exactly why. Blood testing done at NIH — delayed at first by the government shutdown — showed Bo doesn’t have the rare immune system problem that his doctors suspected he had.
“So now we’re kinda starting over with his immune system, trying to figure out if there’s even a more rare condition he may have, and that requires him to be seen at the NIH,” said Dr. Selena Gierer, an immunologist at KU Hospital.
Once Bo is well enough, he’ll need to go to NIH in Bethesda, Maryland, for more testing. That will determine whether he could benefit from a marrow transplant. Friday evening, a marrow drive will be held in Bo’s honor at Shawnee Mission North High School.
“Just the support when I called the school — I was overwhelmed at their response,” said Carolyn Macan.
She has hope that answers will come soon for Bo.
“We’re so close. I think we’re so close that, like I said, we can’t stop now,” she said.
The “Be the Match” marrow drive will be held from 5:30 to 8 p.m. Friday just outside the gates to the Shawnee Mission North football game at 7401 Johnson Drive in Overland Park. All it takes is a swab of the cheek. The drive is for people 18 to 44 years old.