Looking to treat son’s seizures, family moving to Colorado for marijuana

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BALDWIN CITY, Kan. -- A Kansas family is moving west to Colorado for medical marijuana and they hope it will help their son's medical condition. They've been fighting for the legalization of medical marijuana in Kansas for the past two years ever since their son was born. Lawmakers aren't budging, so they're taking drastic measures in hopes of giving their son a normal life.

"Love. I mean, he's my kid. There's hope I guess, joy most of the time," dad Ryan Reed said.

Reed feels a pleasant sense of joy when he looks at his two-year-old son, Otis. But there's another emotion that comes directly after.

Fear.

When Otis was 9 weeks old he started having seizures.

"That first trip to the hospital was pretty scary, but in the back of mind I thought, ‘We are in the right place, they'll help him. They'll fix him,’" Reed said.

But soon Reed and his wife Kathy realized there would be no quick fix. Otis was diagnosed with a rare type of epilepsy, called “Infantile Spasms,” causing more than 100 seizures a day.

Doctors immediately put him on a wide array of prescription drugs that gave Otis side-effects like high blood pressure, but never stopped the seizures.

"He looks at you and says with his eyes, ‘Help me.’ The only thing we can do is hold him and pray," Reed said.

But there's something that could give their son peace. There's a compound in marijuana called cannabidiol, or CBD. It's been proven to significantly lower the number of seizures for epileptic patients. The Reeds have been trying to prove the treatment's worth to lawmakers by spending countless hours at the capitol.

"We got a lot of, ‘This sounds like you're doing the right thing.’ We didn't get a lot of, ‘Here's what I'm gonna do to help,’" Reed said.

So they were forced to make a series of decisions. Reed quit his job as a teacher. They sold their house and are moving to Colorado to put Otis in medical marijuana treatment, in hopes of leaving the fear behind.

“I hope that, I hope that Otis can get some relief and smile more. When he smiles, it's pretty awesome,” Reed said.

The Reeds are confident this will work for Otis, and when it does, they're going to blog about it. They hope it will catch the attention of those lawmakers in Kansas. You can follow the family's progress through their blog by clicking on this link.

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14 comments

  • caliboss

    the greatest plant in the universe is almost free, LET FREEDOM RING!!!13

    “any doctor against marijuana is a doctor of death” – cali secret 420

    from 0 states to half the country, from low 20% approval to almost 70%, cali runs this planet by 2 decades, time to tie marijuana to the 2014, 2016 elections, out with the old, in with the new

    20 years behind us southern states, sad and scary….nobody denies freedoms like the south, nobody…the top ten incarcerators on the planet are southern states…even if marijuana reforms did pass the republiCANTS in charge would deny you all your freedoms, centuries of practice…no matter though, we never planned on getting your backwards brethren from day one, half the country already but not one southern state, lol…not 1….my turn, I gave you 20 years, watch and learn

    Deaths by Alcohol and Tobacco: Millions
    Deaths by Prescription Drugs: Quadrupled in last decade
    Deaths by Guns: Millions
    Deaths by Marijuana: 0, ever…not only are we not free, they are killing my American family

    love and freedom forever

    AMERICA’S WAR ON DRUGS IS A WAR ON AMERICANS!!!33

  • Nik

    I have no problem with medical marijuana, but until they have a way to field test to see if someone is under the influence of it while driving I don’t think it should be sold readily like cigarettes. Smoking of any kind should be banned in public flat out even outdoor spaces. I hate taking my child even to the park because people are around smoking.

  • Lauren

    This is my niece and her family. Kansas Legislature seems like they just blew them off. Why are lawmakers so scared to do the right thing? This is an oil derived from the marijuana plant. Does not make the recipient high and is working for many families who uprooted their lives to obtain treatment for their family members when nothing else has worked. I hope and pray this will work for Otis. I keeps seeing “experts” say there are no studies to the effectiveness of this treatment and one even said it is the placebo effect. How can a toddler or small child who has been having hundreds of seizures daily fake not having them? These families can’t even go back across state lines to visit grandparents or extended families with their children and their CBD oil. Cut off from their families because no one has the guts to do anything! Let the families who need this treatment now be the test subjects for the medical community. I am sure they would be in total agreement. Otherwise it will be years before anyone does anything just waiting for Big Pharma to jump in and claim credit and jack the prices up. I’ve had my say, but I love these people and am hurting for them to have to go through this.

  • Amanda

    I am Amanda from texas usa,my son was suffering from this devilish disease called epilepsy when i heard about how cannabis oil have been curing this disease i decided giving it a trial,i saw an article on how cancer centre London provides cannabis oil so i contacted them via email londoncancercentre@gmail.com and within 5days the cannabis oil was delivered to my address and apart from that he gave me instructions on how to use the oil. My son is now free and no longer an epileptic patient.To my greatest surprise this cannabis oil works like a magic.

  • Anca Vander

    Hi everyone, I was diagnosed with stage 3 bowel cancer in June last year and after surgery, everything that could be seen was taken. I tried chemo for 2 weeks and had no control of my bowel for another 3 weeks. Never will have chemo again! I have just had 7 months with my daughter in United states where I was able to obtain and take 60 grams of hemp oil from phoenix tears plus E-mail( phoenixtearsplus@aol.com ) Fortunately, the latest CT scan sees there is no tumors in my lung and liver and the cancer have disappear. That was how hemp oil kill my cancer and relief my pain.