‘Freezin’ for a Reason’ raises funds for kids with rare genetic disease

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KANSAS CITY, Mo. -- Temperatures neared 35 degrees Thursday and most people wouldn't go for a swim in these temperatures.

But the Winnebago Water Wizards Ski Club didn't mind the cold.

Members strapped on their skis to help three siblings with a rare genetic disease.

FOX 4 photojournalist Jon Haiduk takes you inside the ninth annual "Freezin’ for a Reason" event at Lake Winnebago.

(Watch his report ion the video player above.)

The event raises money for the Cox children. Doctors have diagnosed all three kids, ages 13, 17 and 20, with SDS. It’s a rare genetic disease which involves the pancreas, bone marrow and skeleton.

If you'd like to help CLICK HERE or visit the Lake Winnebago Lions Club Facebook page HERE.

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